Cleft@18-23
The research programme is led by University Hospitals Bristol and Weston NHS Trust and the University of Bristol and is funded by the National Institute for Health and Care Research (NIHR). The research will also determine how we can address any identified variation and ensure that all young adults have the same chance of achieving the best possible outcomes.
Children born with a cleft will often have multiple surgeries as well as other treatments from speech and language therapists, dentists, specialist nurses, audiologists and psychologists as they grow and develop. As they reach adulthood, individuals vary in their appearance, their speech and their wellbeing but there is limited information about how they vary. Currently, it is not known if some groups do better or worse than others.
We are looking for people to take part who:
- are aged 18-23 years old
- have a cleft lip and/or palate
- had their 1st operation for their
- cleft before the age of 2 years old
- had their 1st operation for their
cleft and continued their treatment
in the UK - have been discharged from their
cleft centre more than 6 months
ago
Information for patients::
We will invite you to come to a
Cleft@18-23 Research Clinic at one of
the Cleft Centres in the UK. You will
be at the clinic for about 3 hours.
At the clinic we will ask you to:
- complete questionnaires
- have photos taken of your face &
mouth - record a sample of your speech &
have your hearing checked - have your teeth checked
At the end of the clinic assessments we will give you a £50 voucher as a thank you for your time. We can also pay back your travel costs.
If you would like to find out more please contact: cleft-1823@bristol.ac.uk. Telephone 07484 515 858